Supported Independent Living (SIL) for Dravet Syndrome
When Supported Independent Living suits Dravet Syndrome, what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with Dravet Syndrome who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits Dravet Syndrome, what it funds, and how to get it into a plan.
Is SIL right for Dravet Syndrome?
Dravet syndrome is a rare, severe genetic epilepsy that usually begins in the first year of life, most often triggered by fever or temperature change. It is most commonly caused by a change in the SCN1A gene. The…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for Dravet Syndrome
Start by getting a functional assessment that shows the level of daily support Dravet Syndrome requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and connect with…