Supported Independent Living (SIL) for Fragile X Syndrome
When Supported Independent Living suits Fragile X Syndrome, what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with Fragile X Syndrome who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits Fragile X Syndrome, what it funds, and how to get it into a plan.
Is SIL right for Fragile X Syndrome?
Fragile X Syndrome is the most common inherited cause of intellectual disability and the most common known genetic cause of autism. It is caused by a mutation in the FMR1 gene on the X chromosome, resulting in little or…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for Fragile X Syndrome
Start by getting a functional assessment that shows the level of daily support Fragile X Syndrome requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and connect with…