Supported Independent Living (SIL) for Lennox-Gastaut Syndrome
When Supported Independent Living suits Lennox-Gastaut Syndrome, what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with Lennox-Gastaut Syndrome who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits Lennox-Gastaut Syndrome, what it funds, and how to get it into a plan.
Is SIL right for Lennox-Gastaut Syndrome?
Lennox-Gastaut syndrome (LGS) is a rare, severe form of childhood epilepsy — a 'developmental and epileptic encephalopathy'. It is defined by multiple seizure types that resist medication, a distinctive pattern on the…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for Lennox-Gastaut Syndrome
Start by getting a functional assessment that shows the level of daily support Lennox-Gastaut Syndrome requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and connect…