Supported Independent Living (SIL) for Phelan-McDermid Syndrome
When Supported Independent Living suits Phelan-McDermid Syndrome, what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with Phelan-McDermid Syndrome who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits Phelan-McDermid Syndrome, what it funds, and how to get it into a plan.
Is SIL right for Phelan-McDermid Syndrome?
Phelan-McDermid Syndrome (PMS), also known as 22q13.3 deletion syndrome, is a rare genetic condition caused by deletion or disruption of the terminal region of chromosome 22, commonly involving the SHANK3 gene. SHANK3…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for Phelan-McDermid Syndrome
Start by getting a functional assessment that shows the level of daily support Phelan-McDermid Syndrome requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and connect…