Supported Independent Living (SIL) for Edwards Syndrome (Trisomy 18)
When Supported Independent Living suits Edwards Syndrome (Trisomy 18), what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with Edwards Syndrome (Trisomy 18) who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits Edwards Syndrome (Trisomy 18), what it funds, and how to get it into a plan.
Is SIL right for Edwards Syndrome (Trisomy 18)?
Edwards syndrome, also known as Trisomy 18, is a genetic condition caused by an extra copy of chromosome 18. This affects development before birth and causes a wide range of serious medical and developmental problems. It…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for Edwards Syndrome (Trisomy 18)
Start by getting a functional assessment that shows the level of daily support Edwards Syndrome (Trisomy 18) requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and…