Supported Independent Living (SIL) for FOXG1 Syndrome
When Supported Independent Living suits FOXG1 Syndrome, what SIL funds, and how to get it into your NDIS plan.
Supported Independent Living (SIL) funds the day-to-day help someone needs to live in their own home. For many people with FOXG1 Syndrome who need support across the day and night, SIL is the backbone of independent living. This guide explains when SIL suits FOXG1 Syndrome, what it funds, and how to get it into a plan.
Is SIL right for FOXG1 Syndrome?
FOXG1 syndrome is a rare, severe neurodevelopmental disorder caused by a change in the FOXG1 gene on chromosome 14, which is crucial for early brain development. Once described as a congenital variant of Rett syndrome,…
What SIL funds (and what it doesn't)
SIL pays for the support workers who help you in your home, based on a roster of care matched to your assessed needs. It does not pay your rent or the building itself — that's covered by your income or, for eligible…
How SIL is funded
SIL sits in your Core budget. Because it's high-cost, the NDIA looks closely at the evidence:
Getting SIL into a plan for FOXG1 Syndrome
Start by getting a functional assessment that shows the level of daily support FOXG1 Syndrome requires, and set a home-and-living goal. A support coordinator can help you gather quotes and evidence and connect with…