Hereditary Spastic Paraplegia — NDIS Support

Yes — Hereditary Spastic Paraplegia can qualify for NDIS support. HSP is on the NDIA’s List B — permanence is recognised, and you evidence the functional impact on daily life. Funding covers reasonable and necessary supports across daily living, therapy, social participation and capacity building.

Hereditary spastic paraplegia (HSP) — also called familial spastic paraparesis or Strümpell-Lorrain disease — is a clinically and genetically heterogeneous group of inherited neurodegenerative disorders characterised by progressive spasticity and weakness of the lower limbs due to degeneration of…

HSP & the NDIS FAQs

Is hereditary spastic paraplegia eligible for NDIS?
HSP is a List B condition. NDIS requires evidence of permanent and significant functional impairment. Those with pure HSP and mild spasticity that does not significantly limit daily activities may not qualify. Those with moderate-to-severe spasticity affecting gait, significant falls risk, bladder impairment,…
Does NDIS fund intrathecal baclofen pumps for HSP?
Intrathecal baclofen (ITB) pumps are implantable medical devices for severe spasticity, typically prescribed and implanted through neurosurgery or rehabilitation medicine. The surgical procedure and pump implantation are funded through the health system (Medicare and hospital). NDIS may fund the community disability…
What walking aids does NDIS fund for HSP?
NDIS Capital Supports fund walking aids for people with HSP whose gait and mobility impairment justifies the equipment — rollators, quad sticks, walking frames, and manual or power wheelchairs. An OT and physiotherapy assessment prescribes the appropriate aid. For HSP with significant spasticity and foot drop, custom…
How is a genetic diagnosis of HSP confirmed and does this affect NDIS?
HSP is confirmed by clinical features (progressive lower limb spasticity and weakness, characteristic gait, bladder symptoms) and genetic testing (gene panel or whole exome sequencing identifying a pathogenic mutation in an SPG gene). Some HSP cases remain genetically unsolved — clinical diagnosis alone is sufficient…
Can someone with HSP work and still receive NDIS?
Absolutely. NDIS supports participation in employment for those who wish to work. NDIS Capacity Building — Finding and Keeping a Job can fund vocational rehabilitation, workplace AT assessment, and employment supports. Many people with HSP work full or part-time, particularly in the early and moderate stages of the…

HSP & the NDIS — practical guides

Related conditions

Sources

Reviewed by the Novida editorial team · last reviewed 2026-07-12. General information only — not medical advice.