NDIS Early Childhood & School Support for Coffin-Siris Syndrome
How the NDIS early childhood approach supports young children with Coffin-Siris Syndrome, and how supports work alongside school.
For young children with Coffin-Siris Syndrome, getting support early can make a real difference to development and confidence. The NDIS uses a dedicated early childhood approach for children under 9, and supports continue to work alongside school as they grow. This guide explains how it works.
Coffin-Siris Syndrome and the early childhood approach
Coffin-Siris Syndrome (CSS) is a rare genetic condition that affects development, growth and several body systems from birth. It is caused by changes in one of a group of genes that help control how other genes are…
What early supports look like
Early intervention for Coffin-Siris Syndrome is family-centred — it builds the skills of the child *and* the people around them. It commonly includes:
How supports work with school
As your child starts school, NDIS supports and the education system each play a part:
Getting the right early plan for Coffin-Siris Syndrome
Bring reports from your child's treating team and early educators to planning, and set goals around communication, independence, play and school readiness. Early plans are reviewed as your child grows and their needs…