Marfan Syndrome — NDIS Support
Yes — Marfan Syndrome can qualify for NDIS support. Marfan is on the NDIA’s List B — permanence is recognised, and you evidence the functional impact on daily life. Funding covers reasonable and necessary supports across daily living, therapy, social participation and capacity building.
Marfan syndrome is an inherited disorder of the body's connective tissue — the material that supports and holds together the body's structures. It's caused by a change in the FBN1 gene, which affects a protein called fibrillin-1. Because connective tissue is found throughout the body, Marfan…
Marfan & the NDIS FAQs
- Is Marfan syndrome eligible for the NDIS?
- Not automatically. Marfan syndrome is not a 'List A' condition, and many people manage well with medical monitoring rather than disability support. Eligibility depends on whether its features cause a permanent, substantial reduction in your everyday functioning — for example severe spinal or joint problems, chronic…
- Why is the aorta such an important concern?
- Because connective tissue supports blood-vessel walls, Marfan syndrome can cause the aorta — the main artery leaving the heart — to enlarge over time. If it enlarges too far it can tear or split, which is life-threatening. This is why regular heart monitoring, blood-pressure medication such as beta-blockers, and…
- Can children with Marfan syndrome get support?
- They can, if the condition substantially affects their functioning and development. Many children are managed medically, but where skeletal problems, pain, fatigue or vision issues have a significant lasting impact, support may be warranted. For children under 7, the early childhood approach considers developmental and…
- What everyday supports help most?
- Where function is affected, physiotherapy and exercise physiology to keep moving safely, occupational therapy for fatigue and daily tasks, and pain management are often most valuable. Vision and mobility aids help where eyes or joints are involved, and home or workplace adjustments reduce strain. Supports are tailored…
- Is Marfan syndrome inherited?
- Often, yes. Marfan syndrome usually follows an autosomal dominant pattern, meaning a parent with the condition has a 50 percent chance of passing it to each child. In some people it appears for the first time with no family history, due to a new gene change. Because features vary within families, genetic testing and…
Marfan & the NDIS — practical guides
- Applying for the NDIS with Marfan Syndrome
- Assistive Technology for Marfan Syndrome
- Day Programs & Community Participation for Marfan Syndrome
- NDIS Funding & Budget for Marfan Syndrome
- Therapy & Allied Health for Marfan Syndrome
- Finding & Managing Support Workers for Marfan Syndrome
Related conditions
- Mowat-Wilson Syndrome and the NDIS
- Mucopolysaccharidosis (MPS) and the NDIS
- Multiple System Atrophy (MSA) and the NDIS
- Myasthenia Gravis and the NDIS
- Osteogenesis Imperfecta and the NDIS
- Pitt-Hopkins Syndrome and the NDIS
- Post-Polio Syndrome and the NDIS
- Postural Orthostatic Tachycardia Syndrome (POTS) and the NDIS
- Progressive Supranuclear Palsy (PSP) and the NDIS
- Scleroderma (Systemic Sclerosis) and the NDIS
Sources
Reviewed by the Novida editorial team · last reviewed 2026-07-12. General information only — not medical advice.