NDIS Early Childhood & School Support for CDKL5 Deficiency Disorder
How the NDIS early childhood approach supports young children with CDKL5 Deficiency Disorder, and how supports work alongside school.
For young children with CDKL5 Deficiency Disorder, getting support early can make a real difference to development and confidence. The NDIS uses a dedicated early childhood approach for children under 9, and supports continue to work alongside school as they grow. This guide explains how it works.
CDKL5 Deficiency Disorder and the early childhood approach
CDKL5 Deficiency Disorder (CDD) is a rare genetic condition caused by changes in the CDKL5 gene, which makes a protein essential for normal brain development. It is a form of developmental and epileptic encephalopathy,…
What early supports look like
Early intervention for CDKL5 Deficiency Disorder is family-centred — it builds the skills of the child *and* the people around them. It commonly includes:
How supports work with school
As your child starts school, NDIS supports and the education system each play a part:
Getting the right early plan for CDKL5 Deficiency Disorder
Bring reports from your child's treating team and early educators to planning, and set goals around communication, independence, play and school readiness. Early plans are reviewed as your child grows and their needs…